Re: any ideas? ("Jesteadt, Walt" )

Subject: Re: any ideas?
From:    "Jesteadt, Walt"  <jesteadt(at)BOYSTOWN.ORG>
Date:    Tue, 30 Dec 2003 09:01:27 -0600

Monita, I think this is an interesting case. The peripheral auditory system does work, of course, when we sleep, but we do not normally hear sounds that occur during that time. This is an analogous cortical condition, a form of auditory neuropathy. I would do site of lesion testing on the daughter and the father. Maybe they do not have a peripheral hearing loss. It would be hard to see how the "unheard" information gets transmitted to the brain if there is a severe peripheral loss. Since this is a father/daughter combination, I would do a genetic workup. I do not think this is a common condition. Walt Jesteadt, Ph.D. Director of Research Boys Town National Research Hospital 555 N. 30th Street Omaha, NE 68131 Phn: 402 498-6704 Cell: 402 676-5386 Fax: 402 498-6351 -----Original Message----- From: Monita Chatterjee [mailto:mchatterjee(at)HEI.ORG] Sent: Monday, December 29, 2003 7:06 PM To: AUDITORY(at)LISTS.MCGILL.CA Subject: any ideas? Dear list, I just received the following email from an individual with hearing loss. Any thoughts/experience specific to her questions would be appreciated. Thanks, Monita Chatterjee ----------------- Dr. Chatterjee, I have a question that has been bugging me for some time. I was diagnosed as going deaf when I was 12. My father is profoundly deaf but the majority of his hearing loss occurred within a 10 year period ending around the end of puberty. I am moderately deaf at the age of 41 and started wearing hearing aides at the age of 29. No one else in our family was hard of hearing until after the age of 60. My question follows the next described situation. My father, who one must now scream at for there to be any understanding (he wears behind the ear aides on both ears), will at times repeat ideas or fragments of converstions when he is in the room but not participating in a conversation. There doesn't seem to be any acknowledgment on his part that he is indeed hearing any of these ideas. Minutes later he will repeat these ideas as if they were his own. My husband has repeated this to me as well. That I have been, for the 10 1/2 yrs that we have been together, done this same thing. When it has been pointed out to me right when it happens, I swear I did not hear anything. I do believe that I am hearing this, my cochlea is transmitting this to the part of my brain that hears, yet I cannot say that I have heard. I have met other deaf individuals that have happened this to them. The aforementioned situation occurs even when I am not wearing my aides. What is happening? My question is this: is there any research going on in this area? Perhaps the connection between my cochlea and the part of the brain that processes the stimuli is defective? Could it be rectified? Is anyone studying this? What is this called? Since I know that I am not alone in this condition, I can only assume that this a quite common condition. Is there anything I can do to lessen this, or learn to hear what stimulus is being received by my brain? Also, when I wake after a particularly good rest, why can I hear noise better? I can turn the TV on for my children and can hear the "noise" of it better at a lower volume. My comprehension may or may not be better at a lower volume on those days, but what I really notice is the noise that I can acknowledge at a lower volume. I will await any type of answer that you can provide. If this is not in your area of expertise, please feel free to forward my questions to someone who is knowledgable in this area. -------------------------------------

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